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Projects

Radically reimagining what health is

Browse a selection of the key research projects being undertaken in the Centre by our core researchers

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The Social Life of Death

ARC Discovery Project 2023 - 2026

Leads: ProfessorÌýAlex Broom, DrÌýKatherine KennyÌýand Associate ProfessorÌýNadine Ehlers
Research Team: DrÌýLeah Williams Veazey

This project takes a person-, family- and community-centred approach to understanding how death, dying and bereavement are lived and experienced in Australia today. Using interviews, diaries and photographs, we will take an in-depth look at what matters to people at the end of life and how people give and receive care.

In the wake of COVID-19, and as Australia’s anticipated ‘death boom’ approaches, how to foster ‘good’ deaths has never been more uncertain, or more urgent. This project aims to generate new knowledge to better inform policy and practice, and to spark cultural conversations and social change around the end of life.

Expected outcomes include setting the international benchmark for novel scholarly understandings of death, dying and bereavement, and centring community voices in addressing contemporary challenges to dying well.

This project is funded by an Australian Research Council Discovery Project grant (DP230100372)

  • Systematically document the evolving experience of death, dying and bereavement in Australia using innovative qualitative methods, with a focus on how intersecting social transformations are shaping these experiences;
  • Uncover enduring and emerging challenges to a ‘good enough death’;
  • Develop new theoretical perspectives on death, dying and bereavement amidst social, economic, cultural, political and ecological transformations as deeply relational and interconnected;Ìý
  • Provide a rich evidence base for how the end of life might be done better, from diverse community perspectives;
  • Co-create public-facing outputs that illuminate the various ways that death, dying and bereavement are experienced in Australia to prompt policy improvement, spark cultural conversation and inspire social change.

As part of this project, we will be speaking to people who are approaching the end of their life, to their family and friends, and to people who have been bereaved.

If you think you would like to take part in this project, please contact us via email atÌýhealthy.societies@sydney.edu.au

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Kids, Bugs and Drugs: Human-Microbial Relations in Everyday Family Life

ARC DECRA 2023 - 2026

Lead: DrÌýKatherine Kenny
Research Team:ÌýDrÌýJianni Tien, DrÌýRoberta Pala, DrÌýLeah Williams Veazey, Dr Jennifer Hagedorn,ÌýImogen Harper

This project investigates human-microbial relations in everyday family life within the context of escalating Antimicrobial Resistance (AMR).

It’s hard to believe that antibiotics were discovered less than 100 years ago. Since then, the ability to cure infectious diseases caused by bacteria, viruses, and fungi has been one of medicine’s most powerful success stories. But things are changing...

Increasingly, microbes are becoming resistant to our standard arsenal of antimicrobials, resulting in the development of AMR and untreatable ‘superbugs’, which has caused a rise in deaths from infectious diseases over the last few decades.

The current situation demands new ways of understanding and new ways of interacting with the microbial world around us.

‘Kids, Bugs and Drugs’ is a multi-year research project that aims to understand how people manage microbes. ÌýUsing innovative qualitative methods, this project expects to generate a better understanding of how human-(anti)microbial relations are understood and negotiated in community settings in daily life.

Expected outcomes include new knowledge in the field of health sociology and a crucial evidence base that will yield significant benefits by informing and enabling community-centred responses to the growing AMR threat.

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This project is funded by anÌýAustralian Research Council DECRA Fellowship (DE220101498).

  • Systematically document the diverse understandings of and practices related to human-microbial relations in everyday life from a range of community perspectives using innovative qualitative methods;
  • Provide key insights into how antimicrobials are used and/or resisted within families, with a focus on meanings and practices across the in/formal care nexus;
  • Develop novel theoretical understandings of human-microbial-antimicrobial relations that attend to the temporalities of illness and relations of care and dependency within the global context of escalating AMR;
  • Deliver policy-relevant and publicly-resonant knowledge by uncovering community-focused perspectives and practices, which will better inform novel educational and practice-improvement strategies in the future.

We are currently looking for research participants for this project. Please follow the relevant link below to learn more:

If you are:

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Child Wellbeing in the Context of Parental Detention

ARC DECRA 2023 - 2026

Lead: DrÌýMichelle Peterie
Research team: Dr Laura Vidal, ProfessorÌýAlex Broom, Suzette Jackson, Isabella Kristo

This project investigates the consequences of parental immigration detention for children living in the Australian community. Using qualitative sociological methods, it aims to document and theorise children’s experiences of a parent’s detention, with a focus on the factors that shape children’s social, emotional and material wellbeing in these situations. Expected outcomes include new knowledge concerning the lives and welfare of these potentially vulnerable children, as well as evidence-based insights regarding the policy reforms and social supports they need to thrive. The project will deliver internationally relevant recommendations to help policymakers and service providers improve the lives of children and families navigating the incarceration of a parent.

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Partner organisation: The Australian Human Rights Commission

This project is funded through an Australian Research Council Discovery Early Career Researcher Award grant (DE230101047)

  • Document the social, emotional and material consequences of immigration detention for detainees’ children;
  • Develop a nuanced qualitative picture of the factors that shape children’s experiences of a parent’s detention;
  • Deliver novel theoretical insights regarding the collateral impacts of migrant incarceration, contributing to interdisciplinary understandings of carcerality and the social production of intergenerational disadvantage;
  • Make urgent policy recommendations to improve and safeguard the wellbeing of detainees’ children and their families.

Recruitment for this study is currently open. We are looking to speak with children who have or have previously had a parent detained in Australian immigration detention, as well as these children’s parents and caseworkers/supporters.

If you would like more information, or believe you may be eligible to participate, please contact Dr Michelle Peterie:Ìýmichelle.peterie@sydney.edu.au

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ARC Hub to Combat Antimicrobial Resistance

ARC Research Hub 2021 - 2026

³¢±ð²¹»å²õ:Ìý±Ê°ù´Ç´Ú±ð²õ²õ´Ç°ùÌýÌý(Hub Director) & ProfessorÌýAlex BroomÌý(Usyd Hub Lead)

The proliferation of antimicrobial resistance (AMR) requires a uniquely collaborative approach to research, which brings together all stakeholders, across industry, health and research.

This ARC Hub to Combat Antimicrobial Resistance, led by Director Professor Rebecca Guy, and with the social science component led by Professor Alex Broom, is an over $18 million, 5-year collaboration, to make a considerable impact on AMR, bringing together pharma, biotech, researchers and health providers, to provide innovative solutions.

The University of Sydney component of the Hub focuses on the social science of stewardship, diagnostics and implementation.

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This project is funded through an Australian Research Council Research Hub grant (IH190100021)

  • Take on the global challenge of AMR for Australia through a world-first partnership between industry, researchers, and end-users;
  • The AMR Hub fosters a pre-commercialisation environment to address both social and laboratory-based preclinical challenges to provide a highly integrated diagnostic, pharmaceutical and end-user solution to the problem of AMR;
  • Support the development of new molecular diagnostic technology, improve the processes for identifying potential antibiotic compounds and assess and advise on antimicrobial stewardship with a vision to transform social and health outcomes globally.

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Nourishing the future

This joint project ofÌýSydney Centre for Healthy SocietiesÌýand theÌýCharles Perkins CentreÌýexplores the relationships between food systems and practices in social contexts, including in relation to the acceleration of social inequality, multispecies challenges, biodiversity loss, environmental degradation, geopolitical tensions and global financial stability.

It includes a particular focus on the global production, distribution and (lack of) regulation of harmful industrially manufactured foods, as well as the broader political economy they operate within.

This research program reconceptualises pervasive health threats such as obesity, diabetes and premature death as emergent from complex and multifaceted food systems rather than the food and lifestyle ‘choices’ of individuals, alone.

By centring food systems, and the impediments to change that they present, we consider the social and structural drivers of these entrenched modes of production, distribution and consumption that must shift in order to protect the health of people and the environment.

This project is funded by Charles Perkins Centre JennieÌýMackenzieÌýResearch Fund and the Faculty of Arts and Social Sciences, The University of Sydney

  • Explore the prefigurative ways of living and eating of the future through transgenerational leverage points, with a focus on parents and the ways that children and youth are learning to navigate food/food systems;
  • Platform examples of prefigurative food politics that are nourishing the future societies and exemplify the sustainable food practices that communities want to see;
  • Identify policy and governance practices and frameworks that might limit or could foster healthy food and food systems.

As part of this project, we will be speaking to:

  • parents on the barriers and enablers to (un)healthy food choices;
  • people involved in alternative food practices, communities and movements;
  • people who are part of the policy and regulatory ecosystem, including people involved in food research, civil society, government and the food industry.

If you think you would like to take part in this project, please contact us via email atÌýfood.social.life@sydney.edu.

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'Superbugs' in India: Antimicrobial Resistance, Inequality and Development in India

ARC Discovery Project 2019 - 2023

Leads: ProfessorÌýÌý& ProfessorÌýAlex Broom

This project explores the intersections of poverty, cultural practices and the rise of antimicrobial resistance (AMR). This includes the evolving interface of industrial pharmaceutical development, inequality, relations between humans and animals, and so on.

This project is funded through an Australian Research Council Discovery Project grant (DP190100823)

The project aims to strengthen understanding of the intersections of therapeutic use, infective threats, economic conditions and cultural practices by:

  • Documenting the cultural dynamics of infective risk, illness experience and infection management in India;
  • Identifying the cultural, political and economic drivers of engagement with antimicrobials at the ‘local’ level;
  • Investigating environmental exposure, industrial production, and global/local markets for antimicrobials;
  • Examining state and institutional responses to the threat of AMR and widespread ‘misuse’ of antibiotics;
  • Producing policy-relevant findings for improving future antimicrobial interventions and governance.

Broom, A., Doron, A. (2022).Ìý.ÌýSocial Science and Medicine, 292, 114520.

Broom, A., Doron, A. (2020).Ìý.ÌýQualitative Health Research, 30(11), 1684-1696

Current projects

Leads: ProfessorÌýAlex BroomÌýand DrÌýMichelle Peterie
Research Team:ÌýImogen Harper

Care is a constant presence throughout our lives, from the moments of our births, through our experiences with illness and aging, right through to our eventual deaths. We require care for our survival and flourishing. Equally, we are often called upon to care for others, be they kin, kith, acquaintances or strangers. The forms these caring entanglements take shape who we are in our everyday lives – and, indeed, who we are permitted to be.

As part of this project, we are exploring the experiences of ‘carers’ across a broad range of sites and contexts, interrogating care’s complexities, contradictions and embeddedness in the (sometimes coercive, often unjust) systems and structures of contemporary life.

Exploring carer experiences in contexts as seemingly different as illness and unemployment, immigration detention and climate catastrophe, we are examining the unwieldy nature of care and caring, troubling romanticised renderings of the carer experience and exposing care’s darker underbelly.

This project will culminate in the publication of a co-authored book (currently under contract with Polity Press) that offers a new analysis of caring relations that integrates rich human stories, cutting-edge social science and humanities theory, and a focus on the social, political and economic transformations that are rapidly reshaping carers’ lives.

This project is funded through the Faculty of Arts and Social Sciences, The University of Sydney.

Leads: DrÌýMichelle Peterie, ÌýDrÌýKatherine Kenny, ProfessorÌýAlex Broom, and ProfessorÌýGaby Ramia

Care is fundamental to our individual and collective wellbeing. Yet care is also steeped in power and deeply implicated in historical and present-day inequalities and injustices. Taking seriously the darker potentialities of care as a relation of exploitation and domination, this collaborative project interrogates the social and governance infrastructures that variously shape, expropriate, necessitate and unravel care at the ‘private’ interpersonal level.

Building on the momentum generated through two collaborative workshops/conferences in 2022, this project will culminate in the publication of an edited collection (currently under contract with Policy Press). Combining rich empirical analysis and theoretical rigour, the collection will paint an evocative picture of: (a) entrenched inequalities in the distribution of both informal care responsibilities and the resources needed to undertake them, (b) the intimate relationship between care, exploitation and expropriation, including the embeddedness of informal care in colonial configurations of power, and (c) the importance of reforming, resourcing and valuing informal care at the infrastructural level. Ultimately, it will bring together cutting-edge scholarship on social infrastructures and social care to ask how care might be reconfigured in the service of healthier and more equitable societies.

This project is funded through the Faculty of Arts and Social Sciences, The University of Sydney

Leads: ProfessorÌýAlex BroomÌýand Associate ProfessorÌýAlice MotionÌý(Sydney Nano Institute) and DrÌýKatherine Kenny
Research team: DrÌýJianni Tien

Project Description

New and emerging nanoscale biosensing technologies promise to revolutionise the detection of airborne pathogens circulating in any particular environmentÌý±è°ù¾±´Ç°ùÌýto their infection of human bodies.

While the development of nanoscale biosensors has drawn increasing attention in the wake of the COVID-19 pandemic, the social consequences of such innovation have not been as comprehensively considered.

In collaboration with The University of Sydney Nano Institute (SydneyNano), this interdisciplinary research project examines the social dimensions of scientific and technological innovation, grounded in the specifics of the development of nanoscale biosensing technologies.

This project examines how we can bring social science and nanotechnology expertise into closer dialogue, and how we mightÌýdo so further upstream in the innovation process than is usually the case.

By exploring the people and processes behind technological innovation, we are building a clearer understanding of the intersection between technoscience and society. By centring the social consequences of new nanoscale technologies, we examine how we can firmly embed a focus on ethics, politics, and power relations into the innovation process.

ÌýAims and objectives of the project:

  • To explore the intersections of technoscience and society including issues of envisioned futures, technocratic imaginaries, sustainability and social justice, using qualitative methods;
  • To bring social science and nanotech expertise into productive dialogue further ‘upstream’ than is usually the case;
  • To explore how this collaboration might serve as a model for ‘upstreaming’ ethical, legal and social issues/implications and responsible research and innovation approaches and more firmly embedding the social sciences within the innovation pipeline.

Partner Organisation:ÌýThe University of Sydney Nano Institute (SydneyNano)

We are seeking research participants for this project

We are currently looking for research participants for this project. If you are involved in the field of nanotechnology and are an academic, scientist, researcher, HDR student, research assistant or project manager at a university or tertiary institution, we would love to hear from you. Please contact Dr Jianni Tien atÌýjianni.tien@sydney.edu.au

2022 - 2024

Leads: DrÌýMichelle Peterie
Research team: Nadeen Madkour

This project brings together key scholars from Australia, North America, the UK and Europe to interrogate the harms immigration detention imposes within and beyond detention centre walls. The project will culminate in the publication of a forthcoming edited collection (currently under contract with Routledge), structured in three parts:

  • Part 1:ÌýHuman CostsÌýexamines the harms immigration detention imposes on people who are not personally incarcerated, but are nonetheless touched by detention regimes. These chapters paint an evocative picture of immigration detention facilities as carceral institutions that impose punishment beyond the detainee, causing multiple layers of (often politically expedient) harm.
  • Part 2:ÌýSocietal ConsequencesÌýtakes a wider view, exploring the ramifications of immigration detention for society at large. The chapters in this section offer critical perspectives on the embeddedness of immigration detention regimes in broader systems of exploitation and extraction. They show how (racialised and gendered) immigrant detention naturalises and perpetuates gross inequalities and injustices – reproducing harm at the local and global levels. Chapters in this section also draw attention to the corrosive impacts of immigration detention on the law and democracy. Ultimately, the chapters in this section attest that the social harms of immigration detention are at once disproportionately felt by marginalised communities, and ultimately borne by us all.
  • The final section of the book –ÌýPart 3: Ending the HarmÌý– considers how the reverberating harms documented in this book might be addressed through detention reform and detention abolition.

This international edited collection will be a key reference text for scholars and students in the social and behavioural sciences who are interested in immigration detention, human rights and/or incarceration.

This project is funded by a University of Sydney Robinson Fellowship

ARC DECRA 2024 - 2026

Lead: DrÌýLeah Williams Veazey

This project investigates the experiences of Australia’s migrant and mobile health workforce in the context of increasing care needs and worker shortages worldwide. It explores how healthcare workers’ family relationships and informal care responsibilities shape their migration decisions, experiences in the workplace and plans for the future.

People who provide healthcare are more than just workers. They live multidimensional lives in which their professional skills, home environment, national identity and personal histories and biographies are crucially important in their migration decisions. Yet, current attempts to attract and retain healthcare workers are often overly centred on professional skills, rather than on healthcare workers as members of families, networks and communities, as well as skilled professionals. This narrow view neglects many dimensions of their lives, including their informal care commitments and attachments – caring for children or elderly parents, for example. Healthcare workers, as participants in both formal and informal care, provide an exemplary case for examining how care and work interact in contemporary Australia. The Australian healthcare system is globally connected via the movement of people and sharing of knowledge. This project investigates how these connections shape, and are shaped by, the delivery of care in the workplace and beyond.

Aims and objectives of the project:

  • Document the experiences of Australia’s mobile and migrant healthcare workforce (including healthcare students), from the perspectives of healthcare workers and students, and their caring and collegial connections.
  • Develop a nuanced picture of the complex interplay between work, care, knowledge and emotion and how these shape the migration trajectories of healthcare workers in a digitally-connected world.
  • Deliver novel theoretical insights into the intersecting geographic, affective, occupational, epistemological and relational dimensions of migration decisions by centring the family (in all its diverse forms) and networks of care.
  • Work with policy and industry stakeholders to develop study findings into effective policy solutions to future-proof the healthcare workforce and maximise Australia’s capacity to attract and retain healthcare workers and the expertise they bring to Australia.

This project is funded by an Australian Research Council Discovery Early Career Researcher Award grant (DE240100074)

Leads: ProfessorÌý, ProfessorÌýAlex Broom,ÌýProfessorÌý, ProfessorÌý, Associate ProfessorÌýÌýand DrÌý

Although cancer survival is increasingly common, some people have exceptional cancer trajectories (ECTs). Unexpected survival can be understood in various ways: from statistical outliers to posing serious challenges to current understandings of cancer. There is a need to explore these contested interpretations, where biophysical understandings and lay accounts of illness and healing meld and clash. This project will investigate how survivors, their companions and supporters, and their health and medical carers represent, understand and negotiate survivorship, to gain insights into anomalous survivorship. By delving into the complexity of the extraordinary we open the prospect of turning the exceptional into the normal.

Aims and objectives of the project:

Overall, our goal is to greatly advance our understanding of ECTs and the complex and elusive phenomena they encompass. To achieve this, we have multiple objectives. We will:

  • Develop new knowledge about how ECTs are experienced and understood by cancer patients, their significant companions and the practitioners involved in their care and seek insight into how these multiple perspectives align and clash;
  • Identify the values and moral imperatives underpinning responses to, and claims about, ECTs;
  • Identify the strategies that patients and health practitioners use when responding to understandings of exceptional cancer outcomes;
  • Advance understanding of patient identity construction and reconstruction in relation to cancer diagnosis, experiences of cancer and the therapeutic approaches taken;
  • Explore contested or controversial claims and identify their underlying assumptions;
  • Examine the normative systems at play in ECTs (what understandings are allowed).

2018 - 2023

Leads: DrÌýKatherine KennyÌý& ProfessorÌýAlex Broom
Research team: Associate ProfessorÌýEmma KirbyÌý& DrÌýStefanie PlageÌý

Two out of every five Australians – almost half of us – will be diagnosed with cancer before our eighty-fifth birthday. Even so, we generally don’t fully understand what cancer diagnosis, treatment and survivorship are really like until we go through them ourselves. Before that, we hear about ‘fighting the battle’, see #fightcancer hashtags and go-fund-me pages, and know – in general terms – how tough treatments like chemotherapy can be. But the representations of cancer that we typically see in the media are fairly narrow and so we get only limited glimpses into the day-to-day experiences of people who are living (and sometimes dying) with cancer. These glimpses rarely show the full picture of what day-to-day life with cancer is like – away from the hospital and back in ‘everyday’ life. This isn’t easy to document. It takes place both within and well beyond the walls of the hospital or clinic, can be quite private and is sometimes difficult to talk about or explain.

So, we gave some of the participants in our study a camera and asked them to show us, with photographs, what living with cancer was really like, for them.

Aims and objectives of the project:

In addition to the aims of the ‘Changing Landscapes of Cancer Survivorship’ Project, of which this project is part of, ‘Picturing Cancer Survivorship’ also seeks to:

  • Document how people experience cancer in a person-centred way, that is, not only as a ‘patient’, but as a mother, father, daughter, son, husband, wife, or grandparent, as a person at home, or at work, as a friend, neighbour, or member of the community.
  • Develop innovative visual methods for studying topics that can be difficult to discuss
  • Build a better understanding of what people actually go through when they’re living with cancer.

Visit theÌýPicturing Cancer Survivorship website

Download a copy of the project book:ÌýPicturing Cancer Survivorship: A Collection of Photographs from the Changing Landscapes of Survivorship Ïã½¶Ö±²¥Ìý(2022) (PDF).

Partner organisation: Royal Brisbane and Women’s Hospital

The Picturing Cancer Survivorship project is part of ‘The Changing Landscapes of Survivorship’, an Australian Research Council-funded Discovery Project (DP150100414)